RVCL-S Center Update

RVCL Center Family Meeting and Videos

We thank everyone who attended our half day family meeting held Saturday August 26, 2017. This educational meeting summarized new research studies, provided updated information about the recently begun clinical therapeutic trial, and offered advice about genetic testing, prenatal diagnosis and alternative reproductive strategies.

You can watch each presentation that was made at the family meeting by clicking the link provided below and choosing each presentation you wish to watch. Here is a summary of the presenters, their topics and approximate length of presentation:

  1. John Atkinson, MD, Professor of Medicine and Director of the RVCL Research Center at Washington University School of Medicine (WUSM) provides a welcome and introduction (25 min)
  2. Andria Ford, MD, MSCI,  Associate Professor in Neurology (WUSM), describes  neuroimaging assessments (20 min)
  3. M. Gilbert Grand, MD, Professor of Ophthalmology describes eye testing and results (24 min)
  4. Kathy Liszewski, Assistant Professor of Medicine and RVCL Research Coordinator (WUMS), provides an update on the clinical trials (13 min)
  5. Madonna Bogacki, RVCL Administrator (WUMS), describes how the RVCL clinical trials are paid for and patient financial resources (13 min)
  6. First Question & Answer Session (18 min)
  7. Jonathan Miner, MD,  PhD, Assistant Professor of Medicine (WUSM), summarizes his RVCL research of developing a mouse model of RVCL (17 min)
  8. Nan Yan, PhD, Associate Professor at University of Texas Southwestern Medical Center, describes his RVCL research (18 min)
  9. Sandy Morse, MD, Chief Virology Section, National Institutes of Health, summarizes his RVCL research (8 min)
  10. Stacey Barton, MSW, LCSW, discusses genetic testing (9 min)
  11. Diana Gray, MD, Professor of Obstetrics and Gynecology (WUMS), advises about prenatal screening and diagnosis (17 min)
  12. Emily Jungheim, MD, MSCI, Associate Professor Fertility & Reproductive Medicine (WUSM) describes assisted reproductive technologies (9 min)
  13. Final Question & Answer Period (7 min)