Thank you for your interest in learning more about RVCL and the clinical and research studies being conducted at the RVCL Research Center at Washington University School of Medicine in St. Louis.

Our team is dedicated to conducting basic research as well as performing clinical and animal studies in order to learn more about the cause of RVCL. We want to better understand how RVCL affects the brain, vision, and other functions. Another top priority is  to develop ways to prevent and to treat RVCL.

To stay informed about our research and any future family meetings, please complete the secure contact form below.  If you have an interest in participating in a study, please refer to the “Registry” tab above.

Mailing List




With your permission, we will save this information and add you to our mailing list, so we can contact you with research updates and events.  We will keep any information that you give us confidential in a password protected database in a locked office.

Contact Us

If you have any questions regarding our RVCL clinical studies, please reach out.

Jennifer Babka, RN

Jennifer Babka, RN

Research Nurse Coordinator, Neurology

Maria Hagan

Maria Hagan

Clinical Research Coordinator, Neurology

Please only provide very basic contact information in your initial email. When we receive your message, we will reply with instructions for secure email communication.

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