2021 ClayCo Foundation Innovation Research Awards

2021 ClayCo Foundation Innovation Research Awards
Congratulations to the four scientists and their teams who recently were  awarded two-year grants by the Clayco Foundation for RVCL research projects. One theme of these new grants is development of model systems that are critical to determining how cells are damaged by RVCL. A model system also will greatly help development and assessment of new RVCL therapeutics. […]

Rarest of Them All: Ultra-Rare Rheumatic Diseases (Links to an external site)

Rarest of Them All: Ultra-Rare Rheumatic Diseases
Multisystem autoimmune rheumatic diseases are rare or ultra-rare disorders linked to significant mortality and morbidity. However, with the rise of new technology, including data registries and advanced genetic analysis, rare rheumatic disease research is being propelled forward to inform future therapeutic options and improve patient outcomes. In light of Rare Disease Day 2021, Dr Jonathan Miner, MD, PhD, discusses his work and contributions to the rare disease space, and speaks to the importance of research and the management of patients with rare rheumatic diseases.

Bob Clark describes his extremely personal experience with CRV/RVCL (Links to an external site)

Bob Clark describes his extremely personal experience with CRV/RVCL
In his blog (Bob Clark Beyond: More than just a blog), Bob Clark describes his extremely personal experience with CRV/RVCL. After losing his wife Ellen to the disease, and to honor her memory, he worked with Maya Lin (the creator of the Vietnam Veteran’s Memorial) to construct the Ellen S. Clark Hope Plaza at Washington University. They wanted to create “a place that would allow visitors who are coming here – many for very difficult medical situation – to be transported to a beautiful place that would give them a sense of comfort, peace and hope.” The Clayco Foundation also is a major contributor to our RVCL Research and Therapeutics Center.

12th Annual Cure CRV Golf Classic

12th Annual Cure CRV Golf Classic
With social distancing and other precautions, the 12th Annual Cure CRV Golf Classic was held by the Morey Family and Friends in Bentonville, Arkansas. All proceeds help fund CRV (RVCL) research at Washington University School of Medicine.We thank the Morey family and friends!!