Registry

Welcome to the Retinal Vasculopathy with Cerebral Leukodystrophy (RVCL) Research Center Registry.  This website is for patients with RVCL, their family members and friends, and physicians who care for patients with RVCL.

Our center performs research on RVCL, conducts therapeutic treatment trials, provides genetic testing services and distributes educational information about RVCL. As part of our research studies, we  obtain medical records, DNA specimens, and biological samples (blood and urine) from patients and their family members worldwide. These items will help us identify disease-progression biomarkers of RVCL and may lead to new drug targets for therapeutic trials.

Individuals who have been diagnosed with RVCL, as well as family and friends, may be eligible to participate in our various studies. By signing up, we may contact you in the future  to discuss your interests and what studies may be available. You can also join our mailing list to keep updated on new information about RVCL. Click on the links below to consider being part of our studies and/or to join the mailing list.

Click here to  BECOME A PARTICIPANT

Click here to JOIN RVCL MAILING LIST

If you have other questions about RVCL or genetic testing  CLICK here to CONTACT US

John P. Atkinson, MD
Director, Retinal Vasculopathy with Cerebral Leukodystrophy (RVCL) Registry
Samuel B. Grant Professor of Medicine
Director, Rheumatology Division, Department of Medicine
Washington University School of Medicine

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Featured photo: Located in the heart of campus, the Ellen S. Clark Hope Plaza acknowledges the indomitable spirit of Ellen Clark, who passed away March 16, 2010. To learn more about the plaza, visit the following website: https://hopeplaza.wustl.edu/.