Rare Disease Research Provides Insight, Advances in Rheumatic Disease (Links to an external site)
Dr. Jonathan Miner was interviewed by writer Allison Plitman for The Rheumatologist and speaks about his research into rare diseases, such as RVCL.
Bob Clark describes his extremely personal experience with CRV/RVCL (Links to an external site)
In his blog (Bob Clark Beyond: More than just a blog), Bob Clark describes his extremely personal experience with CRV/RVCL. After losing his wife Ellen to the disease, and to honor her memory, he worked with Maya Lin (the creator of the Vietnam Veteran’s Memorial) to construct the Ellen S. Clark Hope Plaza at Washington University. They wanted to create “a place that would allow visitors who are coming here – many for very difficult medical situation – to be transported to a beautiful place that would give them a sense of comfort, peace and hope.”
The Clayco Foundation also is a major contributor to our RVCL Research and Therapeutics Center.
12th Annual Cure CRV Golf Classic
With social distancing and other precautions, the 12th Annual Cure CRV Golf Classic was held by the Morey Family and Friends in Bentonville, Arkansas. All proceeds help fund CRV (RVCL) research at Washington University School of Medicine.We thank the Morey family and friends!!
Spotlight on RVCL and Dr. John Atkinson (Links to an external site)
Article titled “Spotting Birds of a Feather” featured on Global Genes talking about John Atkinson’s research into RVCL and the initiative to develop therapies for this rare condition.
Decades of dedication lead to drug trial for rare, fatal illness (Links to an external site)
Article explores the research efforts to develop therapies for RVCL and the clinical trial evaluating the use of an old cancer drug to treat this devastating blood vessel disease.