First clinical trials begun
The first clinical trial utilizing Aclarubicin for treatment of RVCL commenced December 5, 2016 at Washington University School of Medicine. Two patients initially received infusions of Aclarubicin for four consecutive days with blood work and other testing prior to and at the conclusion of the infusion. The study will be conducted for up to two […]
Robert Clark of Clayco donates to Washington University for study of wife’s fatal disease
Robert Clark and his partners at Clayco have pledged $4.1 million to Washington University for research into the rare disease cerebroretinal vasculopathy. Clark’s wife Ellen died five years ago at age 50 from the disease that affects blood vessels in the brain.
$4.1 million Clayco Foundation gift aids research into rare disease (Links to an external site)
A $4.1 million gift from The Clayco Foundation will advance research led by John P. Atkinson, MD, into a rare but deadly blood vessel disease called cerebroretinal vasculopathy.
Rheumatologist John P. Atkinson, MD, Continues Research into Rare Diseases (Links to an external site)
John P. Atkinson, MD, is a great detective. But instead of solving murder mysteries, he unravels the mysteries behind diseases—diagnosing them, understanding their origin or cause, and identifying effective treatments.
Caregiver inspires crusade: Patient spearheads fundraising efforts for research into rare disease (Links to an external site)
For 20 years, Kim Morey wondered and worried if she had inherited the devastating disease that killed her father at age 49. But she continued with her life, getting married and having three children, in her hometown of Bentonville, AK.